| |
ABOUT THE EVENT
Why your
support matters!
Wade Wallen, a Bloomington resident, Jefferson graduate,
and long-time south metro hockey player, coach and fan,
has been a friend of ours over the years. Wade is now
fighting the devastating effects of Huntington’s
Disease. Instead of shutting himself away, Wade has
chosen to bring to light this horrible disease and make
a difference, with the help of his friends, in the fight
for treatments and a cure. He holds an annual golf
tournament that not only brings hope to his future, but
to all those affected or at risk for HD in Minnesota.
The proceeds of Wade’s Golf Classic go directly to the
‘Wallen Golf Benefit Trust’ that is used to support the
future of Wade, his two children and to support the
Huntington’s Disease Society of America (HDSA)
organization. Due to Wade’s condition, he has not been
employed for quite some time, so anything we can do to
help support his living expenses and college educations
of Brianna and Michael is a very worthwhile cause. The
proceeds that HDSA gets from this event is matched 2:1
by an anonymous donor in NY and are used to help with
research and others affected with this terrible disease
as they face the changes HD brings to their lives. This
legacy will impact many families in Minnesota and is a
lasting tribute to Wade’s courage. For those unfamiliar
with Huntington’s or HD, following is a brief list of
facts about the disease:
• Huntington’s Disease is a devastating, degenerative
brain disorder for which there is, at present, no
effective treatment or cure. It is inherited directly
from a parent.
• HD slowly diminishes the affected individual's ability
to walk, think, talk and reason.
• Huntington's Disease profoundly affects the lives of
entire families: emotionally, socially and economically.
• More than a quarter of a million Americans have HD or
are "at risk" of inheriting the disease.
• HD affects as many people as Hemophilia, Cystic
Fibrosis or muscular dystrophy.
• Early symptoms of Huntington's Disease may affect
cognitive ability or mobility and include depression,
mood swings, forgetfulness, clumsiness, involuntary
twitching and lack of coordination.
• As the disease progresses, concentration and
short-term memory diminish and involuntary movements of
the head, trunk and limbs increase.
• Eventually the person is unable to care for him or
herself.
• HD typically begins in mid-life, between the ages of
30 and 45, though onset may occur as early as the age of
2.
• Each child of a person with HD has a 50/50 chance of
inheriting the fatal gene. Everyone who carries the gene
will develop the disease.
Register now and remember to invite your friends to
play. Thank you for your support of Wade, his kids and
the Huntington Disease Society of America.
_______________________________________________________
Questions?
Call 952-944-6780 or email
virgsenescall@earthlink.net
|